Oh, gosh, I thought I posted today. I don't know one day from the next. I even thought today was Wednesday...got scared for a second this AM, that I needed to get to Columbus for Tuck's neuro appt. Thankfully it was only for a second, I mean, how could I forget I was at MedVet all day?!
Tuck is at ONE DAY!!!
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Justice had a GM abt 4AM and continues having the partials off and on. He is napping at the station, waiting for his brain to stop misfiring.
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I did forget (i think. lol) to tell u guys that I met someone from the epil-k9 list (at least she used to be on it). We emailed each other several times after finding her epi's (yes plural) went to the boys neuro. The list of abt 1,000 people is totally done thru email's or digests-not like here at IMOM. Anyway, I now know 2 mom's that each have 2 epi's (besides me) that see the boys' neuro. I was so surprised when Mari brought over a young woman and introduced her as "Baby's" mom. Sadly Baby died last year, and I felt so bad for her mom when she died.
We gave each other huge hugs-we have supported each other thru a couple tough times.
Many of u guys will remember when Justice was taken off all his seizure meds cold turkey last September. U guys went thru the 3 week nightmare with me.
Well Vice (pronounced Vish) had to go thru a similar thing. The boys neuro took her "Baby" off all meds cold turkey. Now Baby didn't have GM's, but u think Justice's 40 partials are bad--her Baby would have between 100-300 partials EVERY DAY! No amount of meds were helping-Baby was getting worse. Then she was diagnosed with lymphoma. So, it was worth a try, and...Dr Fenner took Baby off all seizure meds cold turkey. She also had a rough initial time with increased partials, but then Baby had the best months of her life, not having any partials most of the time. Dr Fenner said when she started chemo, her partials just started going away. Not a normal response-he can't figure out what happened-was it the off meds cold turkey, the chemo or the combo. But her mom, Dr Fenner, Mari and myself are just so glad Baby was able to have time to not have partials, and lead a more normal life at the end of her life. The Lymphoma took her after a few months. But I can imagine what those last few months were like for Baby and Vice--to not endure and finally watch ur kid's face finally be still, and be able to hold her and enjoy her being "normal". The partials Baby had were not severe like some of the boy's--but just having a constant tremor or twitch--how horrible.
I supported Vice during the cold turkey time, never imagining one of my boys would go thru the same thing. In fact, Vice and I talked and thought no way would he do that with my boys since they have GM's. It took over a month for the neuro to decide, and consult abt trying it with Justice-but Justice in the end made the decision with so many GM's every day, and additional meds didn't help.
So then roles were reversed and Vice would let me know Baby went thru this or that too. It help's having someone who has been in a similar situation.
We definitely had a long hug and were so happy to meet each other.
I was especially glad that Mari brought Tuck out to me, so Vice got to meet one of the little guys she has heard so much abt. We spent abt 30 minutes together. It made my day.
I guess I am thinking so much abt that period during the withdrawal since Justice is jerking, etc. It's not nearly with the same intensity as during withdrawal, but it just makes me uneasy that this is happening.
It was one of the worst times in my life for those 3 weeks when Justice was going thru withdrawal...but it turned out to be a great decision. For 6 months just the Keppra was all he needed, then adding Felbatol...then 57 days!!
He has to come back to me!
Thanks so much Laurie, Leah, Tracy and Deb--how I wish I could give big hugs to each of u in person!! My guess is that I would be like Jacki and head straight for the kids first and give hugs, kisses, scritches, chin rubs, belly kisses, and of course chicken!!!!
Tracy, I sure haven't got used to it yet! Justice will walk and a leg just jerks once or several times, or his face starts twitching. He can be laying down and a leg jerks and then maybe another leg twitches.
My friend Vice said Baby's partials were mainly facial, but occasionally a leg would be involved. I am glad they weren't worse-she is so strong-I couldn't handle it.
Please tell Cody to keep up the good work...and eatin' that delicious chicken that mom makes.
hugs to each of u and of course the kids!
Thanks so much angels!!
P.S. Hi Monique, thanks for stopping in to check on the boys. I am SO HAPPY that Coqui just went to Happy Endings!! I am also really happy u will be staying around and keeping us UTD on Coqui, Izzy, Keira and all the family! Hugs
Edited by k9sign, 20 June 2008 - 09:15 PM.