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Guest Linda IMOM

Tucker and Justice Van Allen - Part 7

1,233 posts in this topic

The boys are both having partials and CP's,. I hope it's just remants from that ole full moon.

Thanks so much angesl!!

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Cindy,

:( I am so sorry I haven't checked in, I hope you know I was thinking about the boys and you but, I am sorry. Wow, I get busy for a few days and the boys fell apart. Well, just tell them that Aunt Leah is back and so don't let me down. At least the cancer news was good, now I am expecting trains, and trains growing.

Cindy I also imagine with all this you are not caring for yourself, please make sure you stay well. Take lots of deep breaths, warm showers. I will talk to the weather folks and try to get things improving so the guys don't have the extra stress of the storms. Just snuggle up with the boys and get yourself enough rest. I am always thinking of you guys and will make sure not to be off the computer for so many days (power cord broke, frustrating).

Love to you and the boys,

Leah and the furry focused pup Cole

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Things went from bad to worse during the night with it finally ending with them both having a GM.

Justice had more then 40 partials before the GM. He has had a few partials today.

Tuck seems to be feeling pretty good, thank goodness.

I hope the double dose of Felbatol helps soon. It should help by Friday/Saturday--which feels a million years away.

I am praying he does not need propofol for the obvious reason of it would mean he needed hospitalization ...but...I called Niki, to see if they have enough propofol and they just did surgery on a 200 lb Mastiff...so no extra propofol until next week-and I don't want to go to MedVet for it!

Mari just called and the neuro is pretty confident the 4.5 days of double dosed Felbatol will do the trick (he at least wants to try it-it would be nice for Justice to have a med he can take here for a few days to stop bad cycles).

The boys at the moment are outside enjoying the cool weather which is great to see. Justice isn't just laying around-he is trying to do some "normal" things even with the partial seizures. From the window I can see him jerking at times, but he just keeps wandering around.

With partial seizures something happens with their body (like twitches, rapid blinking, etc) but they are totally aware of surroundings. With complex partials they are not aware of surroundings.

I am keeping a close eye that the partials he is having don't become CP...or worse.

But I want him to enjoy life and not be babied. He lets me know if he wants me to baby him. LOL.

Hi Leah, no worries abt not checking in! Well it might be a few days before the train, becuz Justie's brain is already misfiring like crazy, but I gave the boys ur message. Tuckie may actually get back on before Justice.

I was so happy Lori has become one of Cole's sponsor's--now just $38 for FULL sponsorship!!! YAY!!

HA, me not taking care of myself--what abt u? Hmmmmmmmmm. LOL.

Thanks for the concern--I did sleep abt an hour this afternoon, and hopefully tonight will be quiet!!

hugs to u and Cole

Thanks so much angels!

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Cindy, so sorry to read that both boys are off the train with GMs. The Cootductor is very sad to hear that. We both hope that the trains start chugging along again very, very soon.

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Cindy,

Very sorry to hear about the pups. I will keep thinking of them and sending the positive vibes to them. I really hope there brains slow back down, I can only imagine how hard it is for you to see:( Know that I am thinking of the three of you hoping tonight is much better.

Love to you all from me and the gang.

Leah

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Hi Cindy,

Oh DANG, both boys! Argh! I'm sorry. I sure hope the meds work on Justie, and that both he and Tuck hop back on soon. Gosh, more than 40 partials??? I don't know whether that would drive me completely crazy, or if I would just get used to it...poor guy!

Cody is doing well. He says "I gots some chicken last nite. Not KFC but it was still good. Mom cooked it on the outside cooker thingy. I tried to steal some chicken-flavored rice stuff to go with it but Mom caught me in time. RATS!" :P

Cody and I send lots of good positive thoughts for the boys to get back on their trains, and lots and lots of :hugs:

Tracy and Cody :stripekitty::heart:

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Darn Cindy, what a couple days you've had. 40 Partials wow, poor Justice, but it sounds like he's doing better if he's out and about. Loads of prayers that it won't go any further. And I just loved what the Neuro said about Tuck. He is an amazing little guy isn't he.

I hope things are calming down and both boys get back on the train soon.

Love and hugs

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Hi Cindy

I'm so sorry to hear the boys have been having problems with their seizures, but it's great to know Justice has no cancer. I'll keep checking in on you guys and posting pics.

Take Care

Monique'

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Oh, gosh, I thought I posted today. I don't know one day from the next. I even thought today was Wednesday...got scared for a second this AM, that I needed to get to Columbus for Tuck's neuro appt. Thankfully it was only for a second, I mean, how could I forget I was at MedVet all day?!

Tuck is at ONE DAY!!!

====================T :1icecream::turtle: ====================

Justice had a GM abt 4AM and continues having the partials off and on. He is napping at the station, waiting for his brain to stop misfiring.

======================J :pp_animal_103: ======================

I did forget (i think. lol) to tell u guys that I met someone from the epil-k9 list (at least she used to be on it). We emailed each other several times after finding her epi's (yes plural) went to the boys neuro. The list of abt 1,000 people is totally done thru email's or digests-not like here at IMOM. Anyway, I now know 2 mom's that each have 2 epi's (besides me) that see the boys' neuro. I was so surprised when Mari brought over a young woman and introduced her as "Baby's" mom. Sadly Baby died last year, and I felt so bad for her mom when she died.

We gave each other huge hugs-we have supported each other thru a couple tough times.

Many of u guys will remember when Justice was taken off all his seizure meds cold turkey last September. U guys went thru the 3 week nightmare with me.

Well Vice (pronounced Vish) had to go thru a similar thing. The boys neuro took her "Baby" off all meds cold turkey. Now Baby didn't have GM's, but u think Justice's 40 partials are bad--her Baby would have between 100-300 partials EVERY DAY! No amount of meds were helping-Baby was getting worse. Then she was diagnosed with lymphoma. So, it was worth a try, and...Dr Fenner took Baby off all seizure meds cold turkey. She also had a rough initial time with increased partials, but then Baby had the best months of her life, not having any partials most of the time. Dr Fenner said when she started chemo, her partials just started going away. Not a normal response-he can't figure out what happened-was it the off meds cold turkey, the chemo or the combo. But her mom, Dr Fenner, Mari and myself are just so glad Baby was able to have time to not have partials, and lead a more normal life at the end of her life. The Lymphoma took her after a few months. But I can imagine what those last few months were like for Baby and Vice--to not endure and finally watch ur kid's face finally be still, and be able to hold her and enjoy her being "normal". The partials Baby had were not severe like some of the boy's--but just having a constant tremor or twitch--how horrible.

I supported Vice during the cold turkey time, never imagining one of my boys would go thru the same thing. In fact, Vice and I talked and thought no way would he do that with my boys since they have GM's. It took over a month for the neuro to decide, and consult abt trying it with Justice-but Justice in the end made the decision with so many GM's every day, and additional meds didn't help.

So then roles were reversed and Vice would let me know Baby went thru this or that too. It help's having someone who has been in a similar situation.

We definitely had a long hug and were so happy to meet each other.

I was especially glad that Mari brought Tuck out to me, so Vice got to meet one of the little guys she has heard so much abt. We spent abt 30 minutes together. It made my day.

I guess I am thinking so much abt that period during the withdrawal since Justice is jerking, etc. It's not nearly with the same intensity as during withdrawal, but it just makes me uneasy that this is happening.

It was one of the worst times in my life for those 3 weeks when Justice was going thru withdrawal...but it turned out to be a great decision. For 6 months just the Keppra was all he needed, then adding Felbatol...then 57 days!!

He has to come back to me!

Thanks so much Laurie, Leah, Tracy and Deb--how I wish I could give big hugs to each of u in person!! My guess is that I would be like Jacki and head straight for the kids first and give hugs, kisses, scritches, chin rubs, belly kisses, and of course chicken!!!!

Tracy, I sure haven't got used to it yet! Justice will walk and a leg just jerks once or several times, or his face starts twitching. He can be laying down and a leg jerks and then maybe another leg twitches.

My friend Vice said Baby's partials were mainly facial, but occasionally a leg would be involved. I am glad they weren't worse-she is so strong-I couldn't handle it.

Please tell Cody to keep up the good work...and eatin' that delicious chicken that mom makes.

hugs to each of u and of course the kids!

Thanks so much angels!!

P.S. Hi Monique, thanks for stopping in to check on the boys. I am SO HAPPY that Coqui just went to Happy Endings!! I am also really happy u will be staying around and keeping us UTD on Coqui, Izzy, Keira and all the family! Hugs

Edited by k9sign

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Wow.. how awesome was that .. meeting Vice and being able to put a face with a computer screen identity.. and then being able to actually give a "real" hug to someone you've gotten so close to. I'm so glad you got to meet her face to face.

Poor Justie.. I just know he'll get back on that train soon. It's got to be taking so much out of him. I just want to come there, hold him on my lap and cuddle with him for the longest time. Please give him some extra belly rubs and hugs from me.

Praying hard that Tucker stays on that train and gets the speed up and keeps going a long, long way. Hopefully, Justice will hop right back on with him.

When you were talking about Justie's cp's.. I was remembering back in the 80's when I was having them. Complex partial seizures. I didn't shake or fall down or bite my tongue or anything like that.. I did normal things during the time I was having them but would have absolutely no memory of having done them. I don't know if I ever told you about that time in my life. It was just so odd, because apparently when they were happening, I knew it at the time. The way I found out was... I had lunch with a friend one day and told her, "call me later and tell me what we talked about, because I'm not going to remember being here with you.".. told you it was strange. And sure enough, later that evening she called to see if I was all right... I said "why wouldn't I be?" and she told me what happened. One night, I was in the shower, and the next thing I knew it was 11:30 at night and I was at the gas station... (fully clothed thankfully). But it was scary as hell. Once, I lost two days... went to work on Thursday and came to on Saturday. So, I could really relate to what the boys go through when this happens. It's frightening.

Cindy, thanks so very much for checking on Mike's blog and taking the time to comment there. You have no idea how much it means to me. I just can't figure out how you find the time or energy to do it. Mike's been up and down lately.. I feel like we're on a roller coaster together and I can't catch a breath on the way down... it takes my breath away sometimes. Gidget, on the other hand, is just so darn cute (and she knows it). She's getting so much better with her house training.. thank goodness. It's so funny though... when she's running ahead of me to get to the door, I see this little wiggle butt just wiggling back and forth and all I could think of is Justie and Tuckie and having WBD's. LOL

Give the kids hugs from me and one for yourself too.

Love & Blessings

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Tuckie is at two days!!

==================T :icecream2::turtle: ==================

Justice had a GM again during the night, and is still having partials.

I am going to ask Niki if I can remove Justie's sutures tmw myself-it's only 3 days early and he has totally healed. Maybe they are bothering him enough to be making him break through.

UH-OH-thunder is here. Severe storms forecast. may not get back on tonight.

Joanna, thanks for the post!! hugs

Ohhhhhh poor Syd!!!!!!

Thanks so much angels!!

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The storm just went over, but it's still raining pretty good. Just wanted to check on you and the boys. I'm going to Syd's next. They had tornado warnings in Medina county.. I think that's where Michelle lives. The warnings are over now.

Praying for all of you that the storms went by fast and didn't affect the kids.

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Tuck made it through the storms, but Justice was having partials during it.

Justie has already had a mild GM. He is full of meds, so I hope the rest of the night will be seizure free.

Tuck is snoring away.

Hi Joanna, at least we didn't have the tornado warnings. I guess more storms may come during the night or later in the day.

I am SO happy that Mike and Gidget are not upset by storms!

I guess u can identify with the boys with CP's!

It's so weird that sometimes they can do the same behavior (like Tuck throwing his head back several times-almost to the point of falling over backwards) and sometimes it's a partial and sometimes a CP--all depends on whether he is aware of his surroundings.

Did u just "grow out" of urs?

Well I hoped after the GM Justie would be done--but he is having partials now, and wants up on my pillow. poor baby.

I will try tmw to get some pics...esp with his Garanimals shirt on.

Thanks so much angels--gonna let Justie curl on my pillow, and hopefully both of us fall asleep!

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Hi everyone,

We have had storms all day. Just when I would think it was safe to turn on the computer, the rumblings would start up again. More storms are coming...

Tuck is at THREE DAY'S!!!

=================T :icecream3::turtle: ==================

Justice is still taking a break...

===================J :pp_animal_151: ===================

Justie has only had a couple partials today. He is active today, and came in with a muddy nose and legs. He is like a toddler-I had to take his shirt off and put on a clean one. Then I asked him not to play in the mud. Did he listen?? No! He needed another dry shirt change.

Tonight I took out his neck sutures. I am waiting until late tmw or Tuesday to take out the leg sutures. Even though he looks totally healed, the sutures are in an area that running could open them. So, they are due out Wed. anyway-but I sure would like to not have to make the trip to Columbus just for a tech to take them out.

Niki said tmw I can take out every other one, or the first and last--then give it some time for him to play and see how it looks before I take out them all (it only 4 or 5).

Tuck is beside me snoring. hehehe.

Justice is down on his "daddy's" lap, which is also a good sign. He has been up here with me or in a room by himself.

Thanks so much angels!

He seems better, but we'll see if he gets thru the night.

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Gee Cindy, that is so great that you guys with epis can get together and support each other. And then to get to meet. I wish I could do that with you too! I am jealous!

Have been missing for a few but had a friend read so was keeping up. I think my friend thinks I am nuts? She may be right!

Hoping things will even out a bit for you. Please be sure to take care of yourself. I know you are probably like me and tend to forget yourself when you go into crisis mode.

Love and big Husky hugs,

Debbie and Jack

Edited by debbie and jack

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Hi everyone,

we had some bad storms again today. It looked like they were further south then

Syd--I hope so!

Justice is better!!! He still isn't on the train, but he is much better.

Justice had lots of head bobbing during the night, and some today--but NO GM'S!!

The neuro said to go ahead and decrease his Felbatol back to his normal dose. WHOO-HOO!! He said the sutures may be bugging Justice enough to cause him to break through since his seizure threshold is down. I am taking his leg sutures out tmw.

Tuck is doing well! Tuckie is at FOUR DAY'S!!

=================T :icecream4::turtle: ================

I hope this is the last day Justice will be waiting at the station!

=================J :pp_animal_151: ===================

Hi Debbie, oh boy, do I wish I could meet u too...and my Jack!!

It has started thundering again, so I need to get off. I won't have a chance to check on anyone-well I did start (I see Manuel has a new Basset-Zorro-yay!), but the thunder started, so I wanted to get the boys updated. So, I sure hope Jack and everyone is having a WBD!!!

Big hugs!

Thanks so much angels!

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Hi Cindy,

Just wanted to let you know that I am still thinking about you and the boys. Sorry I am not around much lately but I am still thinking about you!

Amy

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Hi Cindy, sorry I haven't checked in. Been a busy weekend trying to get stuff done and then yesterday my dad had surgery and was at the hospital all day. He's doing okay though, they just put an additional wire on his defibrillator hoping to help his breathing. But last night they got him up and around and he's still having trouble breathing so they put him on oxygen. He may have to have it all the time.

I'm so happy for Tuckie, 4 days and going strong.

Poor Justice, although it does sound like he's getting better a little bit at a time, I'm sure he will be back on the train in no time. I did get the biggest laugh out of hearing how he went out and played in the mud and needed his shirt changed twice. Yep just like a toddler. He is so funny.

I'm also very happy that you got to meet Vice and so very sorry about her "Baby". God was working there in giving her the last few months of her life normal. Still its never easy to lose our babies to cancer.

We've been getting afternoon storms every day since last Friday. Saturday I was just finishing up the lawn and it started sprinkling. Got the lawn mower put away the windows on the truck rolled up and the dogs in the house and it just poured about a minute later. I call that perfect timing.

Then last night on the way home from the hospital was the best one yet. It was cloud to ground lightening and was beautiful (Yep I love storms and watching the lightening). I was lucky that by the time I got home it had pretty much calmed down. But my poor Mom got home and called me all frantic that she couldn't get out of the car because it was raining and thundering and lightening (she is petrified of storms) and poor Abby (their dog who is also petrified of storms) was out in the back yard. And Mom was so scared. I finally got her calmed a little and she decided she was going to make a run for it. What a night, I know she was tired from worrying about Dad and then to come home to this, I think was just too much for one day.

Needless to say both her and Abby are doing fine this morning although being a bit tired. Me I slept like a dead person, if we got another storm in the night I never heard it.

Hope you have dual trains to report today and the storms have subsided.

Big hugs to you and the boys

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Hey Cindy...

I am sooooooooo happy that Tuckie's hangin' on to that train. I just know that Justice is gonna get tired of that station and hop right on again soon too.

We've had rain and storms almost every afternoon and night lately... well, actually more rain that storms lately, but they say it's gonna be this way for a few more days. Absolutely beautiful in the morning and early afternoon and then rain/storms for evening and night. Oh well, we live in Ohio, and it still beats cold and snow. I just wish it ddn't bother the furkids so much. My kids could care less about it... boy, am I lucky for that. At least that's one thing I don't have to deal with.

Hey.. did you see the pics of Zorro? If not, when you get a chance, visit Winster's thread. I posted some earlier today. Manuel called me three times yesterday and then again at 8:30 this morning.. he is so very happy.. and from the sound of it... so is Zorro. :wub:

Give the kids some belly rubs, and tell Justie it's ok to get muddy... that's what kids do!! :rolleyes:

Love & Blessings

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Hi Cindy and boys,

Yay for Tuckie and his 4 days!! :banana: I'm sorry Justice is still sitting on the platform at the station...I hope today is the day he will hop back on the train.

I was just getting caught up on your thread and read how you got to meet Vice. How neat is that?! I'll bet your support meant a great deal to her. It's so cool when you can meet in person someone you've been corresponding with online, and put a face with the name.

Cody is still waiting at the chuck-free chuck-wagon station, next to Justice's platform. Maybe both our little boys can hop on together?! :banana:

:hugs: to all 3 of you

Tracy and Cody :heart::stripekitty:

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Hi everyone,

I'm having some major puter problems, and I can only borrow this puter for a few minutes.

My bro has an old refurbished mac he says I can have if I go pick it up in Columbus. I am hoping a neighbors' son can figure out what's going on with my PC.

I have never used a Mac before--so I would like my PC back.

Anyway enough of that--Tuckie is at FIVE DAY'S!!

=================T :icecream5::turtle: =================

Justice has only had a couple mild partials--so maybe tmw he will be back on with Tuck.

Both boys had a super day. Justice got his stitches out and was SO brave. They were kind of in his armpit--at least at the sensitive skin near it. He started licking his lips and we all heard a big gulp when I was trying to get the last one out-it was pretty embedded. He got a break and a treat--and then we finished. PHEW!!

So no t-shirt, harness or stitches now!!!

He played outside forever today. Tuck was out a lot too--no rain today. Tmw rain/storms start back up.

Hi Debs, I am praying for ur dad. I am glad ur mom and Abby were OK after dealing with the storm. poor things.

I hope ur dad doesn't need oxygen full time--but at least it's very portable now.

hugs to u and the kids

Hi Joanna, I've not had a chance to check for new pics of Zorro. I am so glad Manuel is so excited. His depression was very worrisome.

Hugs to u and the kids!! Thanks for helping Manuel.

Hi Tracy, oh, Cody, ya gotta get back on the chuck free wagon kiddo!! I hope u hopped on today, but if not, how abt hopping on with Justice tmw???!!!

hugs to u both!!

Marty, if u are reading this-and I know u are--can't get an email to u--so kiss the kids g'nite for me!!

hugs to the 3 of u!

Thanks so much angels!

P.S. anyone use a Mac?? Pro's? Con's? Is it worth the trip down to get it. I hate to waste the gas if it's not. He said it's a refurbished white 1GB mac.

Edited by k9sign

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P.S. anyone use a Mac?? Pro's? Con's? Is it worth the trip down to get it. I hate to waste the gas if it's not. He said it's a refurbished white 1GB mac.

Cindy I was a die hard MAC girl until my 10 year old one died a few years back and I didn't have the funds to purchase another. I WOULD have if I had them though. WAY better than PC's.

Glad to see Tuck is hoppin' the train. Hope Justice gets back on soon!

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Hi Cindy,

If Cody can hang in there chuck-free 'til about 6AM tmw, he can hop on - hopefully with Justice?! Poor baby, I hope his seizures quit and he can get back on the train! Maybe both boys can ride together with Tuckie! I'm glad Tuck is 5 days seizure-free - that's wonderful!

I'm sorry about your computer. 'Puter problems are such a pain. It's been about 9 years since I last used a Mac, so I'm not sure how good the newer ones are. At the time I worked for a company that developed software for Macs only. I really liked them. I seemed to have a lot less problems with them than I had with my PCs, and I hear good things about Macs from other people whose opinions on computers I trust.

That's great that Justice now has his stitches out. No surprise that he was very brave :):pp_animal_568:

:hugs: to the 3 of you. I hope you all have a nice quiet, relaxing night.

Tracy and Cody :heart::stripekitty:

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Cindy,

Glad Tucker is staying strong, hopefully Justices brain will stop all that firing and rest and hop on board with Tuckie. Sorry I haven't been able to check in for a while, but always thinking about you.

Computers, I was given a mac (old one) last year by my brother. After using only PC's since the early 80's, yeah. Now, I would never get another PC, I love my Mac... I would check it out, probrobly worth the drive. Also, my old one got kinda banged up by my kiddo's, laptop got dropped (long story) and screen broke so we hooked it up to another stationary screen and its been working fine, till a kiddo tripped on the cord and well, another problem. But the other night, you all would be proud, using another laptop, reading instructions from the internet, I opened the laptop up, took it totally apart, insides out, top, bottom, shell, inards and all, lots and lots of very tiny screws. Got it back together, NO extra screws (quite amazing I think) and cranked it up . . . YES it is working fine.

So, take a drive and if it needs something, maybe you can send it my way and I could give it the old one two. Hopefully, it works well, for a long time.

Love to all,

Leah

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Cindy,

Sorry I've been gone so long - last I read, you were worried that the lumps might be cancer. I'm thrilled to read that they are NOT!!!!! I'm also glad Justice got his stitches out. Maybe now he'll feel better and get back on the train. Thrilled that Tuckie is doing so well!!!

Lots of hugs to the boys - and take care of yourself too.

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